Caring for Individuals with IDD

Caring for diverse patient populations presents a lot of new and unique challenges for patients, providers, and family members. This week, I’m going to focus on one patient population in particular: Individuals with intellectual and developmental disabilities (IDD).

History of the Best Buddies Keith Haring Logo - Best Buddies ...Throughout college, I have volunteered with and have been a peer mentor for the Best Buddies chapter at Union College. Best Buddies is a non-profit organization that strives to support individuals with IDD by providing them with one-on-one friendships, employment opportunities, development of leadership and communication skills, and self-advocacy skills. Being a part of Best Buddies has been a very rewarding experience, and has also shown me some of the challenges that individuals with IDD face everyday.

Challenges

One of the challenges that individuals with IDD face is communication. Often times, they can have difficulty communicating effectively with others, which can prevent them from being able to express their thoughts and feelings to family members, friends, or even healthcare providers.

Integration into society and employment are also two major challenges (1). Many individuals do not have a post-secondary education and aren’t able to access resources that would allow them to obtain internships or other experiences. Additionally, the stigma that exists surrounding intellectual and developmental disabilities can lead to social isolation and negative perceptions of hiring individuals with IDD.

These challenges and more combine to leave individuals with IDD with increased mental health problems, little to no income, and lower levels of independence (1).

Role of Caregivers & Healthcare for Individuals with IDD

Many individuals with IDD live with their families and rely on them for financial and emotional support, as well as advocacy. However, there is not always enough support for families that are caring for individuals with IDD. Many families are expected to provide lifelong care, but this is not feasible in some situations and extra support is needed (2). In Albany, St. Margaret’s Center provides 24-hour care and support for children with disabilities. This includes pediatric care, group activities, and helping families navigate insurance and other services. This is a very helpful option for families of younger children with disabilities, and it would be great to see similar resources for adults with IDD that face some of the same challenges.

In healthcare settings, the challenges faced by individuals with IDD can lead to poorer health outcomes, even with advocacy by caregivers. Individuals with IDD face higher rates of co-morbidities and chronic conditions, as well as challenges in understanding their own healthcare issues and the services that are available to them. A lot of providers don’t receive enough training and don’t have experience in communicating with and caring for individuals with IDD (3).

Resources

Some additional resources for individuals with IDD, such as this Early Intervention Program in New York, are listed here.

While there are a lot of improvements to be made in supporting individuals with IDD and their caregivers, we can start by understanding the unique challenges this population faces and how these challenges create barriers to integration and care.

8,649 thoughts on “Caring for Individuals with IDD

  1. fulbrightscholarship is an updated listing of scholarships for international students, specifically for people from developing countries, people who would like to pursue development-related fields, and people who seek global and national development through further education.

    Reply

  2. That is really attention-grabbing, You’re an overly professional blogger. I’ve joined your rss feed and sit up for in quest of more
    of your magnificent post. Also, I’ve shared your site in my social networks.
    List of Scholarships

    Reply

  3. This post provides valuable insights and practical tips that can make a real difference in your life. Whether you’re looking to learn, be inspired, or simply stay informed, our blog has something for everyone. Fully Funded Scholarships

    Reply

  4. Appreciating the hard work you put into your blog and detailed information you present.
    It’s nice to come across a blog every once in a while that isn’t the same unwanted rehashed material. Great read! I’ve bookmarked your site and I’m adding your RSS feeds to my Google
    account. Scholarships

    Reply

  5. Thanks for sharing this information. I really like your blog post very much. You have really shared a informative and interesting blog post with people. Android apk files

    Reply

  6. “Thank you so much for sharing all this wonderful info with the how-to’s!!!! It is so appreciated!!!” “You always have good humor in your posts/blogs: fulbrightscholarship

    Reply

  7. Nice to be visiting your blog again. It has been months for me. Well, this article that I’ve been waiting for so long. I need this article to complete my assignment in college and it has the same topic as your article. Thanks. Great share.
    the only journey is the one within

    Reply

  8. Yes, I totally agree with this article and I just want to say that this article is a very nice and very informative article. I will make sure to be reading your blog more. You made a good point but I can’t help but wonder. what about the other side? Thanks!
    Central Florida concrete services

    Reply

  9. I am no expert. But I believe you just made an excellent point. You certainly fully understand what you are speaking about. and I can truly get behind that.
    Business Consulting

    Reply

  10. 𝐖𝐚𝐡𝐚𝐧𝐚𝐭𝐨𝐠𝐞𝐥 merupakan situs Slot online terbaik menyediakan layanan deposit Slot Bca 24 Jam resmi tanpa potongan dengan 10 Provider resmi dan terpercaya
    SLOT BCA 24 JAM

    Reply

  11. eiTeck is your go-to destination for rental and sale services for homes and apartments in Lebanon and its surrounding areas. Whether you are interested in Apartments for rent in Metn, houses for rent in Metn and much more.

    Reply

  12. Hi, That looks great, Very nice and informative content. I am a blogger and I own a site. If you are interested in Fashion write for us
    , Please contact me using the link if you need any guest post services.

    Reply

  13. This is the first time I am visiting here. I found so much interesting stuff in your blog, especially its discussion. From the tons of comments on your articles. I guess I am not the only one having all the enjoyment here! Keep up the good work.
    Tranquil Massage Retreat in Luquillo

    Reply

  14. Maltcasino kazandıran Canlı sitesi, malt hakkında tüm güncel bonus kampanyalarına bloğumuzdan ulaşabilir, anında güvenli giriş için sağlayabilirsiniz. maltcasino

    Reply

  15. Hemen Faffbet sorunsuz giriş adresi üzerinden siteye git ve bonus kampanyasına katıl! Şans oyunları alanında ülkemizin en güvenilir … faffbet

    Reply

  16. This is why it is better that you should linked review before developing. It is possible to post superior send that way. jun88

    Reply

  17. Get the latest IGNOU News and updates at your fingertips. Stay informed about important announcements, exam schedules, and academic news. Your go-to source for all things IGNOU.

    Reply

  18. Janitor AI is a website featuring a wide variety of AI chatbots with anime-inspired styles. You can chat with emotions, work, sexualityt. janitor ai llm

    Reply

  19. I’m certainly stricken by the way you discussed this subject. It isn’t frequently I stumbled upon a website with content like the ones you have. Let me take note of your website feed to keep up to date with your hereafter updates. Yet again, I truely like what you’ve got here. ClermontRoofingSolutions

    Reply

  20. I’m impressed, I have to admit. Truly rarely should i encounter a blog that’s both educative and entertaining, and let me tell you, you might have hit the nail around the head. Your notion is outstanding; the thing is an issue that there are not enough consumers are speaking intelligently about. I am very happy i found this in my look for something in regards to this. CFO franchise

    Reply

  21. Your current positions constantly have got alot of really up to date info. Where do you come up with this? Just stating you are very innovative. Thanks again khuyen mai jun88

    Reply

  22. Embark on your Greek journey hassle-free – unravel key details about Greece visa for Indians. Streamline your application process, understand requirements, and glean essential tips for a seamless experience.

    Reply

Leave a Reply

Your email address will not be published. Required fields are marked *