Posted on 20,000 Comments on Caring for Individuals with IDD

Caring for Individuals with IDD

Caring for diverse patient populations presents a lot of new and unique challenges for patients, providers, and family members. This week, I’m going to focus on one patient population in particular: Individuals with intellectual and developmental disabilities (IDD).

History of the Best Buddies Keith Haring Logo - Best Buddies ...Throughout college, I have volunteered with and have been a peer mentor for the Best Buddies chapter at Union College. Best Buddies is a non-profit organization that strives to support individuals with IDD by providing them with one-on-one friendships, employment opportunities, development of leadership and communication skills, and self-advocacy skills. Being a part of Best Buddies has been a very rewarding experience, and has also shown me some of the challenges that individuals with IDD face everyday.

Challenges

One of the challenges that individuals with IDD face is communication. Often times, they can have difficulty communicating effectively with others, which can prevent them from being able to express their thoughts and feelings to family members, friends, or even healthcare providers.

Integration into society and employment are also two major challenges (1). Many individuals do not have a post-secondary education and aren’t able to access resources that would allow them to obtain internships or other experiences. Additionally, the stigma that exists surrounding intellectual and developmental disabilities can lead to social isolation and negative perceptions of hiring individuals with IDD.

These challenges and more combine to leave individuals with IDD with increased mental health problems, little to no income, and lower levels of independence (1).

Role of Caregivers & Healthcare for Individuals with IDD

Many individuals with IDD live with their families and rely on them for financial and emotional support, as well as advocacy. However, there is not always enough support for families that are caring for individuals with IDD. Many families are expected to provide lifelong care, but this is not feasible in some situations and extra support is needed (2). In Albany, St. Margaret’s Center provides 24-hour care and support for children with disabilities. This includes pediatric care, group activities, and helping families navigate insurance and other services. This is a very helpful option for families of younger children with disabilities, and it would be great to see similar resources for adults with IDD that face some of the same challenges.

In healthcare settings, the challenges faced by individuals with IDD can lead to poorer health outcomes, even with advocacy by caregivers. Individuals with IDD face higher rates of co-morbidities and chronic conditions, as well as challenges in understanding their own healthcare issues and the services that are available to them. A lot of providers don’t receive enough training and don’t have experience in communicating with and caring for individuals with IDD (3).

Resources

Some additional resources for individuals with IDD, such as this Early Intervention Program in New York, are listed here.

While there are a lot of improvements to be made in supporting individuals with IDD and their caregivers, we can start by understanding the unique challenges this population faces and how these challenges create barriers to integration and care.

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  4. Caring for individuals with intellectual and developmental disabilities (IDD) is a crucial topic that deserves more attention and understanding. The challenges highlighted, especially in communication and integration into society, shed light on the importance of addressing these barriers to improve the quality of life for those with IDD. It’s heartening to see organizations like Best Buddies working towards providing support and opportunities for individuals with IDD. The role of caregivers and healthcare providers is pivotal, and increased awareness and specialized training in healthcare settings can significantly enhance the health outcomes for this population. Thank you for raising awareness about this important issue and sharing valuable resources to support individuals with IDD. Together, we can work towards a more inclusive and supportive society.

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  35. This article sheds light on the critical topic of caring for individuals with intellectual and developmental disabilities (IDD). The challenges highlighted, particularly in communication and integration into society, underscore the need for a more inclusive and supportive environment for those with IDD. The role of caregivers is paramount in providing emotional and financial support, yet additional external support is crucial to ensure a better quality of life for both individuals with IDD and their families. The emphasis on healthcare training to address the unique needs of this population is a crucial step towards ensuring their well-being. Overall, this article highlights the importance of awareness, understanding, and concerted efforts to improve the lives of individuals with IDD.

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